Update

We have an "official" date all set for Riley's surgery. We have been asked to arrive at MUSC Children's Hospital on Wednesday, October 19th. She will be there for about 6 hours for pre-op type stuff and then they will release her to go home with us that night. We will have to be back super early on Thursday, October 20th for the big day. The surgery will begin around 8:30 and will likely take 5 hours. She will then go straight to the ICU. We won't know how long she'll spend there, obviously, until we see how well she does (we're confident she's going to do AMAZING!) and depending on when she's released from ICU will spend 5-7 more days in the hospital, barring anything going wrong.
The only wrenches that can be thrown into the "official" surgery date is if there is an emergency that arises in another child. Riley could then get bumped from her date and it may get rescheduled. It's the kind of thing that they told us could even happen the morning of the surgery. Also, they have put her on the cancellation list so if a child isn't well enough to have their scheduled surgery on their certain day, they'll call us and give us about 24 hours notice before she goes in. Phew...that will be one heck of a phone call if we get it! I can't even imagine.
So....we're going ahead with our lives thinking that October 20th is our big day (but aware that it could change.)
That's the scoop....Thank you all again so, so much for everything. We continue to be absolutely blown away by all of the love and support we are feeling!